parentingchildrenwithmoyamoya at Yahoo! Groups

Channel 5 programme extraordinary people.....

Jane — Wed, 15 Apr 2009 21:02:49 GMT

Just watched the extraordinary people programme on channel 5. The children with primerial dwarfism could get moya moya..... This is the first time i have

Re: New experience of shopping!

Nancy McStravick — Wed, 18 Mar 2009 07:58:17 GMT

I would like to let everyone know that I did NOT send this email about shopping. I can only presume it a virus of some sort and hope it has not effected your

Re: New experience of shopping!

heather patterson — Wed, 18 Mar 2009 01:09:43 GMT

how do awful when someone invades a site meant to provide support to profit themselves ________________________________ From: Laurie Park

Re: New experience of shopping!

Laurie Park — Tue, 17 Mar 2009 22:34:08 GMT

You have no business being on this website. Take me OFF your list. ... From: Nancy McStravick Subject: [Parenting Children with

New experience of shopping!

Nancy McStravick — Tue, 17 Mar 2009 16:24:58 GMT

New experience of shopping! i would like to introduce a good company who trades mainly in electornic products. Now the company is under sales promotion,all the

2009 CHASA Retreat held in AL

Lora — Sat, 17 Jan 2009 03:59:15 GMT

FWD: We're gathering a list of families who may be interested in attending the 2009 Children's Hemiplegia and Stroke Association, CHASA Family Retreat. We're

Re: seattle area needinf info please

Laurie Park — Sun, 28 Dec 2008 22:36:23 GMT

Dear Wyndi, Your daughter sounds like she is a very strong little girl! My daughter was 7 when she was diagnosed with Moyamoya 3 yrs ago. We are a military

seattle area needinf info please

Wyndi Lee — Sat, 27 Dec 2008 19:40:00 GMT

my daughter has moyamoya like vessels. (progressive narrowing followed by Doppler imaging) she is 2.5 in the seattle area. She has PHACE syndrome and has a

Re: I am cleaning up the spam

Mohamed — Tue, 30 Sep 2008 13:43:16 GMT

Hello everyone, I wrote in in 2006/07 because my daughter had just been diagonised with moyamoya and this site was wonderful in supporting and giving my family

Re: Jennifer

lora beasley — Mon, 25 Feb 2008 05:34:46 GMT

I am glad to hear a parents perspective about Vanderbilt. I need to find a neurosurgeon to monitor Meadow after Dr Steinberg's 6 month follow-up appt in July.

Re: Jennifer

Jennifer Elrod — Sun, 24 Feb 2008 05:38:14 GMT

Yes, we live close to Cookeville,TN , which is about a 4 1/2 hr drive from Memphis. It is east of Nashville. We actually were referred to a neurosurgeon at

Re: Jennifer

lora beasley — Wed, 20 Feb 2008 04:49:39 GMT

Do you live in TN? We are about 3 hours from Memphis. We live in northern corner of AL. Lora To: parentingchildrenwithmoyamoya@yahoogroups.com From:

Re: Jennifer

Jennifer Elrod — Wed, 20 Feb 2008 04:38:10 GMT

Lora, Yes, we have contacted each other a few times via email although it has been a while. I think she first emailed me after I posted a message on the

Re: Jennifer

lora beasley — Wed, 20 Feb 2008 04:13:49 GMT

Hi Jennifer, Have you been in touch with Jenny Moyer? Her daughter also has Neurofibromatosis and MMD. I am not sure if she is part of this group or not...but

Re: Optic malformations assoc w/moyamoya

Nancy McStravick — Tue, 19 Feb 2008 10:53:22 GMT

Hi Lori, I don't know the exact condition but I have heard of a connection with certain eye conditions and moyamoya. Sorry I can't be more specific. Nancy To: