http://health.groups.yahoo.com/group/pws-autism/ Prader-Willi & Autism Support Thu, 12 Nov 2009 20:53:56 GMT Barbara McManus http://health.groups.yahoo.com/group/pws-autism/message/129 http://health.groups.yahoo.com/group/pws-autism/message/129 ONLY ONE WEEK AWAY!! Evan Farrar and Mary K. Ziccardi are putting the finishing touches on their presentation for next Thursday, November 19, beginning at 8:00 Tue, 10 Nov 2009 19:28:13 GMT Barbara McManus http://health.groups.yahoo.com/group/pws-autism/message/128 http://health.groups.yahoo.com/group/pws-autism/message/128 Families and Providers, Janalee Heinemann updated the letter to everyone on our website about H1N1 (swine flu). Please read the new letter at Thu, 29 Oct 2009 21:37:08 GMT Barbara McManus http://health.groups.yahoo.com/group/pws-autism/message/127 http://health.groups.yahoo.com/group/pws-autism/message/127 PWSA (USA) has been getting many calls and emails about the Swine Flu and those with PWS. We have consulted our experts on this subject and have posted a Wed, 28 Oct 2009 18:56:21 GMT Barbara McManus http://health.groups.yahoo.com/group/pws-autism/message/126 http://health.groups.yahoo.com/group/pws-autism/message/126 All, The next webinar will be on November 19th at 8PM eastern time. (8PM EST, 7PM Central, 6PM Mountain and 5PM Pacific time) The title is The Truth about Mon, 12 Oct 2009 19:00:11 GMT Barbara McManus http://health.groups.yahoo.com/group/pws-autism/message/125 http://health.groups.yahoo.com/group/pws-autism/message/125 Hi, everyone! I just wanted to thank our chapters for their efforts to help serve the families in their state. Tennessee, Texas and the Carolinas have Thu, 11 Sep 2008 21:44:52 GMT Cindy Brooks http://health.groups.yahoo.com/group/pws-autism/message/124 http://health.groups.yahoo.com/group/pws-autism/message/124 Micah did this quiet often when he was younger. He has since outgrown just about all of the tics. He is on Vyvanse now for ADD. Don't know if that is what Thu, 11 Sep 2008 21:44:47 GMT JenniferK http://health.groups.yahoo.com/group/pws-autism/message/123 http://health.groups.yahoo.com/group/pws-autism/message/123 Hi Diane, I feel for you; our son Nolan (age 5) also has had many behavioral/social, etc. problems at school and it can be heartbreaking. Nolan has had some Thu, 11 Sep 2008 21:44:39 GMT jasonpws http://health.groups.yahoo.com/group/pws-autism/message/122 http://health.groups.yahoo.com/group/pws-autism/message/122 9/11/2008 Hi Diane, I'm not a behaviorist or diagnostician, but you may want to check into some sensory therapy and possibly a weighted vest to see if that Wed, 10 Sep 2008 03:59:01 GMT rodise6@... http://health.groups.yahoo.com/group/pws-autism/message/121 http://health.groups.yahoo.com/group/pws-autism/message/121 Hello everyone, Just wondering if anyone has experienced "tics' with thier children.? Reagan (5 PWS/UPD) started to have uncontrollable shoulder shrugging over Thu, 21 Aug 2008 09:08:37 GMT Terri & Howard Schlange http://health.groups.yahoo.com/group/pws-autism/message/120 http://health.groups.yahoo.com/group/pws-autism/message/120 Tina, Patrick,age 10, may be having seizures. What happens when Kevin has a seizure? Patrick's seem to happen when he's trying to wake up. It's like he Thu, 21 Aug 2008 00:18:19 GMT Cindy Brooks http://health.groups.yahoo.com/group/pws-autism/message/119 http://health.groups.yahoo.com/group/pws-autism/message/119 Thanks, I had always thought Micah showed many Autism traits, but never really thought about getting the dx for it. Just figured it was the PWS showing up. It Thu, 21 Aug 2008 00:18:17 GMT Cindy Brooks http://health.groups.yahoo.com/group/pws-autism/message/118 http://health.groups.yahoo.com/group/pws-autism/message/118 I'm gonna have to look that one up. We will be having another ARD shortly to get the Autism dx added to it. Thanks, Cindy ... From: Paul & Robin Barrett To: Wed, 20 Aug 2008 22:48:11 GMT JenniferK http://health.groups.yahoo.com/group/pws-autism/message/117 http://health.groups.yahoo.com/group/pws-autism/message/117 Hi Cindy, You're welcome. At first I felt a little uncomfortable playing up the autism piece since Nolan's absolute primary Dx is PWS, but since so many Wed, 20 Aug 2008 22:47:51 GMT Paul & Robin Barrett http://health.groups.yahoo.com/group/pws-autism/message/116 http://health.groups.yahoo.com/group/pws-autism/message/116 Right now the "gold standard" treatment for autism is Applied Behavior Analysis, or ABA. It is very one-on-one labor intensive, so it is expensive. Check it Wed, 20 Aug 2008 20:34:49 GMT Cindy Brooks http://health.groups.yahoo.com/group/pws-autism/message/115 http://health.groups.yahoo.com/group/pws-autism/message/115 Wow, thanks for all the info. Will check into a Texas group. Cindy ... From: JenniferK To: pws-autism@yahoogroups.com Sent: Wednesday, August 20, 2008 1:58 PM