http://groups.yahoo.com/group/pyruvate_kinase_deficiency/ Pyruvate Kinase Deficiency Tue, 17 Feb 2009 16:14:27 GMT caryandjustine http://groups.yahoo.com/group/pyruvate_kinase_deficiency/message/24 http://groups.yahoo.com/group/pyruvate_kinase_deficiency/message/24 Hello all Yahoo-PKD Support Group Members, Due to the MSN Group's closing, MSN-PKD Support Group has moved to Multiply, MSN Group's partner for online groups. Wed, 17 May 2006 17:15:28 GMT Doris O'Reilly-Dillon http://groups.yahoo.com/group/pyruvate_kinase_deficiency/message/23 http://groups.yahoo.com/group/pyruvate_kinase_deficiency/message/23 I hope your daughter is under the care of a good hematologist and if contemplating pregnancy, a good geneticist, because pregnancy may complicate her and her Wed, 17 May 2006 15:47:35 GMT Chris Ferguson http://groups.yahoo.com/group/pyruvate_kinase_deficiency/message/22 http://groups.yahoo.com/group/pyruvate_kinase_deficiency/message/22 Hi My name is Jan Ferguson and my daughter Teresa has PKD and is 17 years old. She wants to be able to have children and we are interested if you have any Sat, 13 May 2006 03:18:08 GMT Doris O'Reilly-Dillon http://groups.yahoo.com/group/pyruvate_kinase_deficiency/message/21 http://groups.yahoo.com/group/pyruvate_kinase_deficiency/message/21 I am new to this group. I have a wealth of info on this disease for anyone who would like to know more, need info, support, etc. I have two children with this Fri, 12 May 2006 02:11:31 GMT caryandjustine http://groups.yahoo.com/group/pyruvate_kinase_deficiency/message/20 http://groups.yahoo.com/group/pyruvate_kinase_deficiency/message/20 You can find Pyruvate Kinase Deficiency Support Group at Google search too! Fri, 12 May 2006 02:11:06 GMT caryandjustine http://groups.yahoo.com/group/pyruvate_kinase_deficiency/message/19 http://groups.yahoo.com/group/pyruvate_kinase_deficiency/message/19 You can find Pyruvate Kinase Deficiency Support Group at Google search too! Sat, 01 Apr 2006 15:01:48 GMT brittany gallion http://groups.yahoo.com/group/pyruvate_kinase_deficiency/message/18 http://groups.yahoo.com/group/pyruvate_kinase_deficiency/message/18 Hi, My name is Brittany I have a 2 1/2 year old daughter. She has pyruvate kinase deficiency and I can't get any answers from the doctors as to whom to look to Mon, 18 Jul 2005 16:34:43 GMT strings_101 http://groups.yahoo.com/group/pyruvate_kinase_deficiency/message/17 http://groups.yahoo.com/group/pyruvate_kinase_deficiency/message/17 Hi everyone. It's good to hear from you again Murielle. Teresa and I had an interesting adventure this past month. We went to Mexico on a short term missions Fri, 12 Nov 2004 19:52:01 GMT WetnWaitin18 http://groups.yahoo.com/group/pyruvate_kinase_deficiency/message/16 http://groups.yahoo.com/group/pyruvate_kinase_deficiency/message/16 Hey people! I am pretty new to the group and I don't mean to be annoying, but I wanted to let all of you know I finally got my webcam back. It took a while to Mon, 18 Nov 2002 22:34:37 GMT caryandjustine http://groups.yahoo.com/group/pyruvate_kinase_deficiency/message/13 http://groups.yahoo.com/group/pyruvate_kinase_deficiency/message/13 If you can't find PKD support group at MSN, please try this way. First go to MSN homepage (www.msn.com), go to people&chat (an option on top of their site), Sat, 16 Nov 2002 09:56:41 GMT caryandjustine http://groups.yahoo.com/group/pyruvate_kinase_deficiency/message/12 http://groups.yahoo.com/group/pyruvate_kinase_deficiency/message/12 To those who are looking for PKD support group My name is Justine Johnson. My husband and I have 3 year old boy with PKD. He is getting desferal due to iron Sat, 16 Nov 2002 00:28:19 GMT caryandjustine http://groups.yahoo.com/group/pyruvate_kinase_deficiency/message/11 http://groups.yahoo.com/group/pyruvate_kinase_deficiency/message/11 ... and ... Dear Gitte Simonsen There is a PK deficieny support group at MSN Please go to Fri, 08 Nov 2002 18:09:46 GMT shitopdk http://groups.yahoo.com/group/pyruvate_kinase_deficiency/message/10 http://groups.yahoo.com/group/pyruvate_kinase_deficiency/message/10 Hi David. We are af family from Denmark, our daughter Laura who is 2 years and 3 mounths old, has been diagnozed with pyruvate kinase, we are wery interested Sat, 27 Jul 2002 11:54:54 GMT Glenn Loyson http://groups.yahoo.com/group/pyruvate_kinase_deficiency/message/9 http://groups.yahoo.com/group/pyruvate_kinase_deficiency/message/9 Hi Yvonne Thanks for replying. As the disorder is quite rare, my patients parents would like to speak to people who have or their siblings have the disorder. I Sat, 27 Jul 2002 11:25:03 GMT yvonne farrow http://groups.yahoo.com/group/pyruvate_kinase_deficiency/message/8 http://groups.yahoo.com/group/pyruvate_kinase_deficiency/message/8 Hi Glenn You must be a good pediatrician to take this much interest in your patients....well done...:) I know of a site that has about ten mothers with small