schinzel-giedion_syndrome at Yahoo! Groups

Re: Mum of SGS Baby

Fiona — Wed, 10 Dec 2008 23:18:33 GMT

... who ... bring ... chance to ... there ... in ... has a ... so ... who ... bring ... chance to ... there ... in ... has a ... so ... Hi there Our little

Mum of SGS Baby

Chooky Johnson — Thu, 11 Sep 2008 03:21:08 GMT

... I am a very proud Mum of a beautiful little girl born 15-07-2008 who was diagnosed with SGS at 2 weeks old. She spent 3 weeks in special care nursery with

Check out my Facebook profile

Jane Elizabeth Morenike Forde — Fri, 05 Sep 2008 21:18:09 GMT

I set up a Facebook profile where I can post my pictures, videos and events and I want to add you as a friend so you can see it. First, you need to join

Re: my niece Malena

maria shaw — Tue, 05 Aug 2008 01:42:48 GMT

Hello Laurie: I am very sorry because of the lost of Patrick, and at the time is a message of hope, because he lived many years over what constitutes

devon

pamcraigmema — Mon, 04 Aug 2008 21:51:46 GMT

hi i am devons grandmother there many things about sgs that are unfair and unkind but there are many things about our babies that are beautiful the dr.s told

Re: my niece Malena

tata4now62 — Mon, 04 Aug 2008 01:39:13 GMT

My prayers to you and your family. I was very fortunate to have my son for 7 years. It wasn't always easy, but I would do it all over again if it meant

Re: my niece Malena

SHADI ONSORI — Thu, 31 Jul 2008 23:31:22 GMT

hi im so sorry about your pain and your sister , my son lived just for 2 weeks and he even couldnt breath by himself , as i heared there is no cure for this

Re: my son devon

maria shaw — Wed, 30 Jul 2008 20:27:44 GMT

Hello, I'm very sorry because you have been in this twice!!! Malena is more or less, she is doing fever, she doesnt tolerate the food well and she is not

my niece Malena

shawmaria — Wed, 30 Jul 2008 20:27:35 GMT

Hello, my name is Maria and I'm from Montevideo, Uruguay in South America, last 28 of December borned Malena, my niece, and they told to my sister that Malena

Re: my son devon

SHADI ONSORI — Mon, 28 Jul 2008 05:25:16 GMT

hi there im sorry for your pain iahave been in this pain twice , i hope you get all support . how is your little one , i hope dr find cure . i wish you best

Re: my son devon

SHADI ONSORI — Fri, 27 Jun 2008 21:58:34 GMT

hi agai i ml iving in canada . ... From: holliday.kelly Subject: [schinzel-giedion_syndrome] Re: my son devon To:

Re: my son devon

SHADI ONSORI — Fri, 27 Jun 2008 21:58:27 GMT

HI I m sorry to hear other family going through again my son just lived for two weeks and because of his situation he couldn't live longer , i pray for you

Re: my son devon

holliday.kelly — Thu, 26 Jun 2008 22:30:56 GMT

... it ... put ... Hello, I'm really sorry to hear that your beautiful son passed away, i have just been looking at his photos. My heart goes out to you and

my daughter Sofie

leithgatchell — Wed, 26 Mar 2008 23:15:12 GMT

Hi there My daughter Sofie has just been diagnosed with SGS. She is 6 weeks old and I am finding it hard to locate any practical information regarding this

Re: My Granddaughter

tina victoria — Tue, 04 Dec 2007 04:46:55 GMT

Hi, I had a patient who's first child was diagnosed with SGS and later died. The child's picture appears on the website. After years of waiting, the mother