http://health.groups.yahoo.com/group/spinabifidacentral/ Spina Bifida Central -A Place To Find Support And Share Experiences Wed, 20 Aug 2008 08:47:07 GMT renu victor http://health.groups.yahoo.com/group/spinabifidacentral/message/4817 http://health.groups.yahoo.com/group/spinabifidacentral/message/4817 Thanx a lot Jenny :) jenjay@... wrote: Hi there: I have a few of those here.........I believe Mentor (now Coloplast) makes them. Not sure of Wed, 20 Aug 2008 01:44:22 GMT Amber C. Kops http://health.groups.yahoo.com/group/spinabifidacentral/message/4816 http://health.groups.yahoo.com/group/spinabifidacentral/message/4816 Hi Jenny, I don't have rods, but I did actually speak to my Myelo doctor last month about swelling in my feet. Since I have poor circulation in them (being a Tue, 19 Aug 2008 21:50:53 GMT christine http://health.groups.yahoo.com/group/spinabifidacentral/message/4815 http://health.groups.yahoo.com/group/spinabifidacentral/message/4815 who are you trying to connect with? Christine ... From: Sara Shirley To: spinabifidacentral@yahoogroups.com Sent: Tuesday, August 19, 2008 5:38 PM Subject: Tue, 19 Aug 2008 21:38:48 GMT Sara Shirley http://health.groups.yahoo.com/group/spinabifidacentral/message/4814 http://health.groups.yahoo.com/group/spinabifidacentral/message/4814 Hi, I looked for you on Reunion.com, but you weren't there. Please connect with me so we can keep in touch. -Sara Do You Know Sara? YES - Connect with Sara, Tue, 19 Aug 2008 20:02:49 GMT Adam Sutherland http://health.groups.yahoo.com/group/spinabifidacentral/message/4813 http://health.groups.yahoo.com/group/spinabifidacentral/message/4813 I haven't posted in awhile, and this topic brought out a lot of things I've been going through, so please bear with the long post. Our son Aaron is now 18 Tue, 19 Aug 2008 19:17:22 GMT jessmajor24 http://health.groups.yahoo.com/group/spinabifidacentral/message/4812 http://health.groups.yahoo.com/group/spinabifidacentral/message/4812 Nikki, I don't know if I am right in the decision I have made and often think I am probably wrong but I can't stand being in the house long. I was already a Tue, 19 Aug 2008 19:17:05 GMT jenjay@... http://health.groups.yahoo.com/group/spinabifidacentral/message/4811 http://health.groups.yahoo.com/group/spinabifidacentral/message/4811 Is there anybody here who had a child who had rods placed, and then the child's feet started to swell up afterwards?? Just wondering, Jenny **************It's Tue, 19 Aug 2008 18:35:02 GMT teeanna1989 http://health.groups.yahoo.com/group/spinabifidacentral/message/4810 http://health.groups.yahoo.com/group/spinabifidacentral/message/4810 My daughter had her rods placed when she was 11 year old and she was lucky at that time if she was 40 pounds and just a couple months aftert hat she doubled in Tue, 19 Aug 2008 15:31:58 GMT dcsh1972 http://health.groups.yahoo.com/group/spinabifidacentral/message/4809 http://health.groups.yahoo.com/group/spinabifidacentral/message/4809 Hey I have not been on in a long time. But my 12 year old had rod surgery last August. They told me she would lose all kind of weight from it. Well we have Tue, 19 Aug 2008 03:35:57 GMT Tami Hurst http://health.groups.yahoo.com/group/spinabifidacentral/message/4808 http://health.groups.yahoo.com/group/spinabifidacentral/message/4808 My daughter (8 mo) has suck/swallow issues as well. I'm not entirely sure if it is related to her prematurity (she was 10 weeks premature) or the SB or both. Tue, 19 Aug 2008 01:35:00 GMT Amber Kops http://health.groups.yahoo.com/group/spinabifidacentral/message/4807 http://health.groups.yahoo.com/group/spinabifidacentral/message/4807 Oh my gosh, I can't believe I forgot to include that in my last post. Thanks for bringing that up Jessica! I also take a laxative daily-Senekot-since I was 17 Tue, 19 Aug 2008 01:29:02 GMT Amber Kops http://health.groups.yahoo.com/group/spinabifidacentral/message/4806 http://health.groups.yahoo.com/group/spinabifidacentral/message/4806 Hi Stephanie, Well, unfortunately I can only kind of answer two of your questions. I have been known to go from constipated to totally loose in the same day. Tue, 19 Aug 2008 00:10:31 GMT Timothy miller http://health.groups.yahoo.com/group/spinabifidacentral/message/4805 http://health.groups.yahoo.com/group/spinabifidacentral/message/4805 Our daughter had problems sleeping, getting up every twenty minutes, and we were sent in for a sleep study. Kelahna has sleep apnea and was desating in her Mon, 18 Aug 2008 22:38:27 GMT greatnessonwheels http://health.groups.yahoo.com/group/spinabifidacentral/message/4804 http://health.groups.yahoo.com/group/spinabifidacentral/message/4804 - I have had stomach problems ever since I have had blood go to my brain after I had my spinal cord untethered I know take remitadine but I have also been on Mon, 18 Aug 2008 20:49:48 GMT hutchinsrslk http://health.groups.yahoo.com/group/spinabifidacentral/message/4803 http://health.groups.yahoo.com/group/spinabifidacentral/message/4803 Kaitlyn is also on Prevacid. The doctor feels that there is some reflux even though the two upper GI tests we've had have come back normal. I do have a stool