http://health.groups.yahoo.com/group/ventilatorkids/ Parents of Children on Ventilators Sat, 23 Feb 2008 23:29:37 GMT rea coronil http://health.groups.yahoo.com/group/ventilatorkids/message/30 http://health.groups.yahoo.com/group/ventilatorkids/message/30 Hello, my name is REA, mi son is 2 1/2 , he had a surgery at 4 days old and has been on the vent and oxygen since. The most important that you have to Fri, 22 Feb 2008 19:52:28 GMT joan http://health.groups.yahoo.com/group/ventilatorkids/message/29 http://health.groups.yahoo.com/group/ventilatorkids/message/29 Hi, Miranda....welcome. My daughter is 12 yo and uses a vent. Mostly on CPAP mode. She has been trached since she was 3 1/2 years old. She has a chromosome Fri, 22 Feb 2008 17:52:18 GMT pinkcottoncandy84 http://health.groups.yahoo.com/group/ventilatorkids/message/28 http://health.groups.yahoo.com/group/ventilatorkids/message/28 ... that ... is ... he ... getting ... is ... Hi Amber, I'm Miranda, and like you my son is also 4 mos old but still in the NICU. I've read some of your posts Fri, 22 Feb 2008 17:44:41 GMT pinkcottoncandy84 http://health.groups.yahoo.com/group/ventilatorkids/message/27 http://health.groups.yahoo.com/group/ventilatorkids/message/27 I'm a new mommy and I had no idea having a premie would be so hard. My son does have BPD, high blood pressure, rickets, and a few others. He'll be coming home Sun, 03 Feb 2008 17:35:51 GMT cindyr.rm http://health.groups.yahoo.com/group/ventilatorkids/message/26 http://health.groups.yahoo.com/group/ventilatorkids/message/26 Hello. Just a reminder, we're a small group but we can offer each other support. We have new members, so please introduce yourself if you haven't yet, to let Fri, 28 Sep 2007 23:18:48 GMT cindyr.rm http://health.groups.yahoo.com/group/ventilatorkids/message/25 http://health.groups.yahoo.com/group/ventilatorkids/message/25 Hello. I don't have any personal experience with this, but a quick search on Google brought up this site: http://www.dol.gov/esa/whd/fmla/ In skimming through Fri, 28 Sep 2007 22:20:38 GMT lnsgrbr http://health.groups.yahoo.com/group/ventilatorkids/message/24 http://health.groups.yahoo.com/group/ventilatorkids/message/24 I have a medical fragile foster child that was placed with me on 9-10. I have missed work under FMLA to train to bring her home and missed 2 weeks of work Sat, 18 Aug 2007 20:34:39 GMT lnsgrbr http://health.groups.yahoo.com/group/ventilatorkids/message/23 http://health.groups.yahoo.com/group/ventilatorkids/message/23 HI. My name is Lin. I am a medical foster parent in KC MO. We are currently fostering a 2 year old with Leighs disease. Leighs is a genetic degenerate Thu, 15 Feb 2007 00:56:36 GMT drisc03 http://health.groups.yahoo.com/group/ventilatorkids/message/22 http://health.groups.yahoo.com/group/ventilatorkids/message/22 Hi Nikki, My name is Sylvia and I have a 27-month old son, Tyler, who was born premature at 27 weeks. He has Bronchopulmonary Dysplasia (BPD), or "really Sun, 17 Dec 2006 21:27:16 GMT Nikki http://health.groups.yahoo.com/group/ventilatorkids/message/21 http://health.groups.yahoo.com/group/ventilatorkids/message/21 Hey all! I thought I would take a minute to introduce myself to the group. I'm Nikki, mommy to Zachary who is 3 1/2 years old. He suffered a severe brain and Sun, 17 Dec 2006 03:31:19 GMT cindyr.rm http://health.groups.yahoo.com/group/ventilatorkids/message/20 http://health.groups.yahoo.com/group/ventilatorkids/message/20 This is a welcome to the new members we've had join this group recently. While it isn't a large group yet, connecting with other moms in similar situations can Tue, 18 Apr 2006 01:36:49 GMT Sylvia Driscoll http://health.groups.yahoo.com/group/ventilatorkids/message/19 http://health.groups.yahoo.com/group/ventilatorkids/message/19 That is sooooooo AWESOME, Amber!! I am very happy for you! I hope you took lots of pictures of the special day. I remember the first time we took Tyler Mon, 17 Apr 2006 23:57:04 GMT Amber http://health.groups.yahoo.com/group/ventilatorkids/message/18 http://health.groups.yahoo.com/group/ventilatorkids/message/18 Sylvia, We got to take Landon on a 9 hr pass for Easter, he was so happy it was the first time since he was born that he left the hospital. He smiled and Mon, 17 Apr 2006 17:24:21 GMT Sylvia Driscoll http://health.groups.yahoo.com/group/ventilatorkids/message/17 http://health.groups.yahoo.com/group/ventilatorkids/message/17 Amber, I didn't know you had such a stressful pregnancy or that the docs recommending terminating it! That had to be terrible! Everything you described as Sat, 15 Apr 2006 00:15:49 GMT Amber http://health.groups.yahoo.com/group/ventilatorkids/message/16 http://health.groups.yahoo.com/group/ventilatorkids/message/16 Sylvia, I always get jealous and feel like I lost out when I see people who are having healthy babies, I cant help but feel that its not fair. I know Landon is